Kimberley Whitehead

ALD Life Ron Hill 10k Accrington

Fundraising for Alex, The Leukodystrophy Charity
£302
raised of £300 target
by 28 supporters
Donations cannot currently be made to this page
Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
We provide support to families affected with leukodystrophies

Story

In 2011 the world came crashing down on the family and continues to bring it's cruel challenges to this day.

At six years old my young cousin, McCauley Riley, was diagnosed with a terminal illness called Adrenoleukodystrophy (ALD).

ALD effects one in 30,000 children in the UK and you may recognise it from the film 'Lorenzo's Oil.  Those diagnosed with the condition usually become totally disabled within 6 months to 2 years and die shortly after this time.

Over the past couple of years Mac's condition has deteriorated and he has since lost his sight, hearing, mobility and has to be tube fed.

With the family already dealing with Mac's condition his older brother  was also diagnosed with the same illness in late 2012.

His condition had not progressed as fast and therefore he was able to undergo a bone marrow transplant (donated by his sister) which will not cure him but has stabilised his condition.

Unbelievably this year other members of the family have also been diagnosed with ALD including the boys Mother and their baby grandson and yet the family continue to put others before themselves by fundraising for other families suffering with children with ALD.

For my part in the fundraising I have targeted myself to lose six stone and to run the Ron Hill 10k being held in Accrington in March 2015.

To show my commitment to this I have so far lost almost 4 stone.

All I ask is you to donate what you can whether it be £1.. it all helps.

Please donate what you can to help these families make the precious time they have with their kids as special as possible.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

About the charity

Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
Established in 2004, Alex TLC is the only charity in the UK that provides invaluable support and information for anyone with a leukodystrophy, their families, and carers.

Donation summary

Total raised
£302.00
+ £61.50 Gift Aid
Online donations
£302.00
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.