My Wife and I are excited to be running this years London marathon for the CDLS foundation. This is our first marathon and we are raising money for a charity that is very close to our hearts. 

Our son Luke was born in 2016. He was very small and initially suffered with reflux and colic but had no other obvious health issues. At 7 months old we became concerned that he hadn’t started sitting so were referred to a paediatrician. As time went on we noticed other developmental milestones Luke wasn’t hitting and he was referred for genetic testing. In January 2019 we finally received a diagnosis. Luke has an atypical form of Cornelia De Lange Syndrome (CdLS). 

CdLS affects children in many different ways, including but not limited to: reduced growth, global developmental delay, feeding problems, speech and language difficulties, hearing problems, seizures, heart and kidney abnormalities and, in many cases, limb abnormalities.

The CdLS Foundation support people affected by CdLS and their families through holding global conferences, family meetings, running a helpline and producing leaflets, newsletters and running a website (www.cdls.org.uk). I know from experience that the families really appreciate the efforts that they make. They are a small charity, run entirely by volunteers including parents and professionals. They do not receive money from central government. The only money that they receive is through donations from family and friends of people affected by CdLS.

If you would like to help us in trying to reach our target and at the same time support our charity, it would be very much appreciated.

Thank you for visiting our page,

Adrian & Hannah x