Hello all!

As most of you will know our son James (aka Jim Bob) has a genetic disorder called Noonan Syndrome. This affects between 1 in 2000 - 5000 people worldwide. The syndrome is considered one of the most complex, due the wide range of medical problems and disabilities commonly present. When James was diagnosed we found it very difficult to obtain information and contact others in a similar position. Newlife, an established charity, are supporting the creation of a team that will provide much needed advice and contact for those affected by this condition. We are helping with this initiative in an effort to support others who are affected by Noonan Syndrome, from families with a new diagnosis to those in adulthood.

We are trying to raise money for the above and I have been volunteered (by the wife!) to run the London 10k road race on the 11th of July 2010. I ask you to dig deep and sponsor me in support of Newlife and the Noonan Syndrome Action Fund.

Thank you all

Alex

 

Please look at www.newlifecharity.co.uk for more details of the support they offer and the research they provide.

 

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Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.