My cousin's beautiful baby Libby is just one of under 100 people around the world with Bohring-Opitz Syndrome, a rare condition which affects growth and development. My sister and I are both running a half marathon on 16 September across the world from each other. I will run the Sydney half marathon and my sister will run the Goodwood half marathon in the UK.

We would like to raise awareness about BOS and any donations will go towards funding further research, which in turn, will help support Libby and shape what the future holds for her.

Please donate by following the page prompts.

To find out more about BOS, please visit http://bos-foundation.org.

If you would like to donate to my sister's page, please copy and paste the link: https://www.justgiving.com/fundraising/katekonik

Thanks for taking the time to visit my JustGiving page.

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