ALL MONIES WILL BE EQUALLY SPLIT BETWEEN ZOE'S PLACE AND CHESNUT LODGE S.E.N SCHOOL.

 run on 02/06/2012 at Winkle near Mansfield...10k fell race 

BIG THANK YOU ANDY AND FAMILY

I was having identical twins i found out 2 days before new years eve that one twin would die after

birth. I was offered all the selective reduction procedures but i knew i couldnt do that. I know
anencephaly is not compatible with life but i loved both my boys
William was born twenty minutes after his twin NEAVEN rathbone. He was a footlong breechand we had
a difficult labour. William was born in respiratory distress. He was on a ventilator and was in hosp
for a month. When william came home he was on oxygen permanently and still was for all 19 months of
his life. William was disabled he had no head control had developement delay, lung disease a neuro disorder macrocephaly, peg feed epilepsy and others. however william was very alert very smiley.

William was always laughing and chuckling he couldnt talk but he chuckled when he wanted you. He was
so little but the gap he leaves is tremendous. Williams apnoea mat went off on sunday morning 28th morning 28th

of december his dad got him and we both did cpr until the ambulance came Wlliam was taken to
warrington hospital.
I cannot express how devasted and distraught we are. wWe are just so lost without you little man. The only consolation i have is he will be with his twin brother Neaven.

WILLIAM, YOU WHERE OUR ANGEL,
SENT FROM GOD ABOVE,
TO SHARE SO MANY JOYOUS TIMES,
TO SHARE OUR FAMILIES LOVE.

YOUR SMILING FACE LIT UP OUR LIVES,
YOU WERE A JOY TO KNOW,
YOU FOUGHT SO HARD TO STAY WITH US,
BUT THEN YOU HAD TO GO.

WE HAD YOU SUCH A SHORT TIME,
OUR MEMORIES WE WILL TREASURE,
TO HAVE YOU AND TO KNOW YOU,
WAS SUCH A LOVELY PLEASURE.

BUT THEN IT WAS YOUR TIME TO GO,
AND MEET UP WITH OUR NEAVEN,
HOW SAD WE ARE TODAY AND ALWAYS
OUR ANGELS ARE IN HEAVEN

We decided to carry to term and all the time pregnant we had 2 plan the funeral i even picked the hymns and designed the mass cards it was so sad picking a coffin and a cot, but i wanted to do it before Neaven was born so i could enjoy whatever time i had and not have to worry about my hubby organising it on his own.
He was born first twin at 1 36 am and died at 4 45 am on the 1st june 2007 . Lived for a wonderful 3
and a half hours. He had black hair and weighed 3 lb 2 oz. He cried once and he looked at me shortly
after that he slipped into a coma and developed apnoea, until he passed. He was christened at 3.30
and he went peacefully something which im very grateful for.
we played twinkle twinkle at their funerals which
really stands out for me it was lovely, we tell his brothers, sister and cousins that hes a little

star and to me he is. We had Baby of mine sang at Neavens funeral and stardust rule the world by take that at Williams
Neaven died of anencephaly which is an open neural tube defect. This happens in the 3rd week of
pregnancy so before you know really. This can be avoided with the use of folic acid, so please make
sure you take it.
We miss him and wish we could have got to know him. he might not have lived long but he lives with
us forever.

SITTING BACK WE WONDER WHY,
WHY OUR SON YOU HAD TO DIE,
THINGS WERE PERFECT AT THE START,
WE LOVED OUR BABIES FROM THE BOTTOM OF OUR HEART,
TWINS, WE WERE TOLD, WE WERE SO GLAD,
WE DIDN`T REALISE, SOON WE`D BE SAD,
THEN OUR WORLD WAS TORN APART,
IT FELT OUR JOY WAS RIPPED FROM OUR HEART,
YOU WOULDN`T MAKE IT WE WERE TOLD,
BUT TO US YOUR SHORT LIFE WAS LIKE GLEAMING GOLD,
YOUR BROTHER WAS FINE, BUT ALAS YOU WERE NOT,
NOW I SIT AND CRY AT YOUR EMPTY COT,
YOUR LIFE WILL LIVE ON IN THE GUISE OF YOUR BROTHER,
BUT MY DEAREST SON THEIR WILL BE NO OTHER,YOU WILL ALWAYS BE SPECIAL AND WE`LL NEVER FORGET,

OUR DARLING SON, WHO WE ONCE MET,
SO GOD LOOK AFTER OUR DARLING NEAVEN,
UNTIL WE ALL MEET AGAIN IN HEAVEN.
Poems by Lin Connoly

http://www.youtube.com/watch?v=3ZR-5lwalNo

 

http://neaven-william-rathbone.gonetoosoon.org/memorial/

 

http://william-neaven-rathbone.gonetoosoon.org/

 

 

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