I have lived with galactosemia now for nineteen years and I’m now going to raise money for the galactosemia support group.

I hope this will help other adults and children suffering with the disease.

They’ve helped my parents out for years since I was diagnosed sending mail to my parents from tests etc but the only way they keep going is from funding and they get no funding of the government

I am doing a 24 hour movie marathon, but I am not choosing my favourite films, I am watching films that I would not normally choose to watch

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