Welcome to our Lily page .  Almost £40,000 has been raised in memory of Noah and we hope to bring the total for the Lily Foundation to £10,000 by the 5th anniversary of little Noah's passing, which is in January 2017. Lily is a wonderful charity that supports families and funds research into mitochondrial disease.

Little Noah Mitford went into heart failure and passed away shortly after his second birthday. Noah had a devastating genetic disorder called mitochondrial disease which was responsible for seizures, delayed development and his inability to deal with even simple winter bugs. You can see a little video of Noah's story here.  http://m.youtube.com/watch?v=ef5jJ-DuSlc

 What we've been doing for the Lily Foundation

Having taken a little breather from the fundraising, we're organising Noah's Mega Payday party in the Stormont Pavilion to mark the 5th anniversary of our beautiful son's passing. Friday 27th January 2017 is sure to be an amazing night with quiz, supper and an amazing live band!

In 2015 we took on some big challenges. A crazy team cycled the length of Ireland in May and another team (Noah's mum and dad, godparents Keri and Brian and dear friends Stuart and Louise) did the great North Run in September.  This was a huge challenge for all, particularly for Noah's parents Nick and Ashleigh who are confirmed couch potatoes!

You can find out more about the Lily Foundation by following the link below. The little animation provides a great explanation of mitochondrial disease. 

http://www.thelilyfoundation.org.uk/mi/mitochondrial-disease/

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.