Our inspiration Grace is an amazing little girl that was born with a rare chromosome disorder called Smith-Magenis Syndrome (SMS) She was diagnosed at just 12 days old. She has complex care needs and requires 24hr care. Despite her difficulties she has the ability to light up the room wherever she goes with her endearing personality.

We are taking part in several events over the year to raise money for the Smith-Magenis Syndrome Foundation, so that families like ours get the vital support thet need.

The foundation is dedicated to supporting families who have children and adults with Smith-Magenis Syndrome, they are a small UK registered charity that supports families who have children of all ages with a diagnosis of Smith-Magenis Syndrome.

Help us to ensure every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.The Smith-Magenis Syndrome (SMS) Foundation UK is at the heart of our community. We will be the first point of contact for those seeking information and support. Nobody should ever feel isolated or alone. We value every person affected by this genetic disorder and shall empower them to reach their full potential as respected members of society.Connecting Families – Raising Awareness – Building Futures