Benoit Grand

BG's 20kg challenge

Fundraising for CDKL5 UK
£3,346
raised of £2,000 target
by 115 supporters
In memory of Louise Uckiah Grand
CDKL5 UK

Verified by JustGiving

RCN 1149099
We are fighting to give our kids a chance to live long, happy and healthy lives

Story

Louise is my daughter. Her heart stopped on 1st Jan 2019, mine broke into pieces. She was 4.5 yo. She was suffering from a rare genetic condition called CDKL5 Deficiency Disorder & multiple unnecessary brain surgeries.

Tons of negative emotions have been surrounding me since then and I wanted to do something practical about them.

One of the many things Louise taught me is that health is actually not a granted element of life. Some have a good health, some would love to be healthy but will never be unfortunately. But some like me could have a good one and neglect it whereas health can leave you in the glimpse of a eye, to let a world of pain start. So it was time to do something about my health... especially to honour Louise's relentless & purely out of this world fight for life.

Being clearly overweight, I challenged myself to lose 20kg (3.15 stones) in 3 months, asking colleagues, friends, family & anybody who wants to help... to support me in that journey, in sponsoring me £1 per kilo I lose, so up to £20 by the end of the 3 months period.

For my sisters & brothers outside the UK, let's count £1 = 1€ = $1 etc to simplify the concept.

100% of donations will go to CDKL5 UK charity or any other local CDKL5 charity.

For more info on the challenge itself, progress, achievements & CDKL5 research, please go to my page : 

https://spark.adobe.com/page/rI4gEiPJgbTmg/

or scan the QR code in the pictures' section.

About the charity

CDKL5 UK

Verified by JustGiving

RCN 1149099
CDKL5 deficiency disorder is a rare condition which manifests in the first few months of life with rare and complex epilepsy. Children and adults with CDKL5 require life long support. CDKL5 UK aims to support families through direct support and patient advocacy. #Togetherwearestronger

Donation summary

Total raised
£3,345.29
+ £663.83 Gift Aid
Online donations
£3,345.29
Offline donations
£0.00

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