Thank you for supporting CFC International! After we received Max's diagnosis of CFC Syndrome, CFC International helped connect us with a network of researchers and medical professionals that changed our lives. CFC International is an organization that dedicates resources to clinics, education, clinical care guidelines, conferences, and research. Over the last two decades, the organization has hosted 10 family medical conferences, provided access to more than 50 specialists in the Rasopathy disorders, contributed more than $100,000 to research, introduced a biobank, research registry, and more. They continue to improve our lives, and it's all because of you and your generous support.

This year, for Giving Tuesday, I'll match the first $2,000 of donations. Together, we can fund research, update medical care guidelines, and, unofficially, try to figure out why kids with CFC Syndrome are so stinking cute. Is it the softer-than-normal skin? The wide smile? The relief of getting through heart surgery and back to the playground? The appreciation for every good minute we have together?  Either way, CFC International has given us more of those good minutes. 

I know that this is a tough year, and if giving money isn't an option that's totally fine! I appreciate you taking the time to read this. If you'd like a holiday card with an update on Max (and Frida and Tobias and me and our make-believe dog,) message me and I'll be happy to send you one!