June 2020 - Cavernoma Ireland for CAUK

Cavernoma Ireland is raising money for Cavernoma Alliance UK
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Fundraising. · 15 June 2020

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Cavernoma Alliance UK (CAUK) supports people affected by cavernoma. A cavernoma is a common but often unheard of condition caused by a cluster of abnormal blood vessels in the brain or spine. Our mission is to improve the quality of life for those affected through education, support and research.

Story

✨CLOSED - June 2020

Fundraising Cavernoma Ireland did in June 2020 for 'Research for a Cure', is going towards 'Novel Gene Therapy'.

A funding partnership - with Cavernoma Alliance UK(CAUK), Cavernoma Ireland and philanthropists with a personal connection to cavernoma - has secured over £100,000 of funding to kick-start development of a novel proof of concept pre-clinical gene therapy treatment.

Some of the money went to CAUK for the support they give their Ireland members, through 'Caver Centre' events. These where hosted by Cavernoma Ireland on CAUK's behalf.

Cavernoma Ireland is now a registered community group, and is finical independent from CAUK. Hosting are own events.

In 2020 June we had this raffle and Connor McGrath did a 10K run.

Draw was held on the 1st July 2020.

Prizes where

1st Prize; Handcrafted 16.5 inch sterling silver chain, with silver disk charm and semi precious citrine bezel. Kindly donated by Aisling Smith Jewellery Designs

2nd Prize; Huawei Band 4 Smart Fitness Tracker - Graphite Black. Water resistance 50 meters. Features such as 24/7 continuous heart rate monitor, and fitness monitoring. Kindly donated by Kay McGrath

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Donation summary

Total
€3,190.59
Online
€3,190.59
Offline
€0.00

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