Thanks for taking the time to visit my JustGiving page.

My wife and myself have been bleased with two beautiful little girls.  When our eldest was born we had a very hard time looking after her and tending to her needs.  We found that she didnt eat, was tired all the time and choked a lot.  The older she got the more we realised that she just couldnt keep going during the day.  She still struggled to do the basic things a child should do, eat, walk, climb, shout and just play for any period of time.  If she even did the slightest of physical activities she could make herself tired which would have a knock on affect for days.  When she was 3 1/2 years old she was diagnosed with Congenital Myasthenic syndrome and was put on life long medication.  It has changed her life and ours.  She can run, play, eat and sadly shout like she has never done before.  We have been very lucky though and really do feel for other families.  Olivias serverity of myasthenia is mild and we are thankful for that everyday as other families endure far worse cases with thier children.  Myasthenic Kids has welcomed us into a world of families all with similar conditions and who are going through the same things.  There is an endless amount of advice and support at Myasthenic Kids and without them there would be a lot of people struggeling on thier own.  We dont want this for anyone and want myasthenic kids to keep going.

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