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Cure EB (formerly the Sohana Research Fund) exists to find a cure for Epidermolysis Bullosa- a very painful genetic skin blistering condition that leads to malignant skin cancer in young adulthood.
Cure EB Registered charity number 1158672
"Good luck and I hope you raise a huge amount for this urgent research."
£400.00 + £100.00 Gift Aid
"Wishing everyone luck with finding an effective treatment and cure soon."
£15.00 + £3.75 Gift Aid
"My brother and I both suffered from severe eczema when we were younger. The bloody sheets/pillows and bandages really hit home. My heart goes out to those suffering."
Jamie F donated
€50.00 + €0.00 Gift Aid
"Veronika has generously pledged her birthday gifts towards this wonderful cause. I hope it helps find a cure before too long."
Alana Samji donated
£50.00 + £12.50 Gift Aid
"Saw Sohanas story via Snapchat Such a beautiful young woman & her positivity & attitude inspires me! Wish I could give more! Hope they find somethng that eases the challenges faced by u n many others!"
Israa Saleh donated
"I hope you may one day wake up pain free. It makes my heart hurt that you have to endure this everyday. Stay strong young lady."
Anony Mous donated
$25.00 + $0.00 Gift Aid
Jennifer Hamilton has raised $8,484.50 so far
Jennifer's Poppy’s Golf Day
Erwan Fournis has raised $3,388.61 so far
3rd edition of the Dalmore Spring Classic
loel hickman has raised $2,386.31 so far
I'm I,m raising money to advance scientific research for loel hickman because Sohana is a fun person and i want to help her
Erwan Fournis has raised $1,181.47 so far
I'm I do this in support for Erwan Fournis because Sohana is amazing
Erwan Fournis has raised $1,136.03 so far
Pilar 's Birthday
Susan Crane has raised $1,045.15 so far
I'm We're celebrating with family & friends on a ship! for Susan Crane because Susan was born in 1965 and we got together in 1985