Donna's page

Donna-Disne Warriner is raising money for Cystic Fibrosis Trust
In memory of John Rayner
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Cystic Fibrosis TrustVerified by JustGiving
RCN 1079049 (England and Wales) & SC040196 (Scotland)
Cystic fibrosis (CF) is a life-shortening genetic condition that slowly destroys the lungs and digestive system. The Cystic Fibrosis Trust is the only UK-wide charity fighting for a life unlimited, when everyone living with CF can look forward to a long, healthy life. www.cysticfibrosis.org.uk

Story

As you all know John loved life and didn't let his battle with CF hinder the way he lived his life.  As he grew up his brilliant parents helped him achieve the best he could in life and not let the CF get in the way.  For this reason a few of us mad people, Rosalind Rayner, Paula Clark, Demi-Ellen Warriner and Donna Warriner have decided to have tattoos to remember him by and raise we hope some decent dosh for CF Trust.    We are are all having '65 roses' tattoed somewhere upon our persons :-)        

 

 

"65 Roses" is what some children with cystic fibrosis (CF) call their disease because the words are much easier for them to pronounce.

 

Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research. Mary's 4-year-old son, Richard, listened closely to his mother as she made each call.

 

Weiss Brothers Then
The Weiss brothers, Richard, 5; Arthur, 7 and
Anthony, 16 months.

After several calls, Richard came into the room and told his Mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis. With some trepidation, Mary asked, "What am I working for, Richard?" He answered, "You are working for 65 Roses." Mary was speechless.

He could not see the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for 65 Roses."

Since 1965, the term "65 Roses" has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with. The "65 Roses" story has captured the hearts and emotions of all who have heard it. 

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£525.00
+ £103.75 Gift Aid
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