On the 4th of December 2017 we lost our big sister Amélie to Tay-Sachs, she is now on the moon and we miss her everyday!

Amélie was always loving and kind to us, she let us play with her toys, watch her movies and she was the perfect patient at playing doctors. She was also very strong and resilient as she lived with a horrible disease for so many years and was the kindest sister!

Amélie taught us to be loving and kind, to enjoy life and that it is so good to share and look after each other. We miss her terribly and speak of her all the time and we write to her on the moon. We want to keep on honouring her memory by supporting The CATS Foundation which Amélie was the inspiration and drive for so many years.

We are putting our running shoes as a family and doing several running events (yes, even mummy!) at the Disneyland Paris Magic Run weekend from the 21st - 23rd September 2018 and we hope to raise millions for The CATS Foundation!

This is a very special place for our family as Amélie visited many times, she loved the characters and the rides and it was easy to take her wheelchair around, so we think it's the perfect place to honour her memory.

Our hope is that we can cure Tay-Sachs (and Sandhoff) and that no other children and families have to say goodbye to their loved one. Until this happens we will continue to support the charity which helps families with these terrible diseases.

Can you help us reach our goal by making a donation towards our challenge?

Thank you!

Grace and Seth Durao Lewi - 5 (nearly 6!!!) years old and 2 years ol

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.