Story

Max is just 13 years old and suffers from a form of epilepsy called Lennox-Gastaut Syndrome.  He was just living a normal happy go lucky life as a 4 year old when he had his first seizure in 2004, his and his family’s lives changed literally overnight.  Max now has to have constant supervision at all times, the simplest of tasks can’t be performed on his own in case he takes a seizure and hurts himself.

Max spends about 90% of his time in a wheelchair not because he can’t walk but because he can take up to 128 seizures in the one day and they simply wear him out.  It’s a catch 22 situation as Max needs to be able to stay active so his muscles don’t waste but activity can bring on the seizures as it makes him tired.

We are raising funds to send him to a world renowned specialist based at Miami Children’s Hospital in pediatric neurology to stabilize him and either worst case scenario cut down on the amount of seizure’s, if not eradicate them completely.  Any help in fundraising towards achieving this goal is very much appreciated.

The goals of treatment for patients with Lennox-Gastaut syndrome (LGS) are the same as for all patients with epilepsy: the best quality of life with the fewest seizures (ideally, none), the fewest adverse treatment effects, and the least number of medications.  His parents are desperate for these things to happen as well as to increase his life expectancy, his quality of life and to give him some independence as he has none whatsoever at present. 

Thank you for taking the time to read this.  If you could pass on the news of what we are trying to achieve we would greatly appreciate this. 



Updates 0

Raising money for

EKCT

EKCT

Charity Registration No. SCO40731

The East Kilbride Community Trust first became incorporated on 1st April 2009 and became a recognised Scottish charity (no. SC040731) on 8th August 2009. Our aim is to bring the community together and to promote a healthy lifestyle to all.

Raising money for

Run by EKCT

Charity Registration No. SCO40731

Donations 256

Donation by Anonymous on 15/11/14

Hi max, did my ice bucket challenge for you.Wish you all the best and hope you get to miami xxx

Donation by Lisa mcaneny on 27/08/14

£5.00

hello Max, lovely to meet you and your parents on the flight to Glasgow after your trip! Hope you arrived safely. Stay brave and strong!

Donation by Dirk on 26/08/14

£100.00

Fingers crossed for u x

Donation by Anonymous on 25/08/14

£10.00

Donation by Anonymous on 25/08/14

Hi one of my friends shared your cause on Facebook, I hope you raise all you need. Xxx

Donation by Susan Reid on 25/08/14

£10.00

Donation by Anonymous on 20/08/14

£20.00

Donation by Sandra Grieve on 20/08/14

£20.00

We unfortunately can't attend the fundraising event at Silverton next week but wish you all the very best.

Donation by Scott and Jan Warren on 20/08/14

£25.00

All the best from Maureen and Alan Murphy

Donation by Anonymous on 07/08/14

£20.00

Donation by Dawn Lawson on 05/08/14

£5.00

Money collected at our wee karaoke night

Donation by Maureen Clayton on 04/08/14

£580.00

Donation by Anonymous on 04/08/14

£20.00

Donation by Cheryl Thompson on 04/08/14

£10.00

Raised at my ladies night in

Donation by Leeanne Turner on 23/07/14

£125.00

Dear Max and family - truly hope you have a very positive experience and outcome. I am Karen's auntie Liz from Aberdeen. I am staying with Karen Ewan and Jecca as I am helpng son at Games,

Donation by Elizabeth McKenzie on 23/07/14

£50.00

My friend (Jo Martin) walked the West HIghland Way to raise funds- sorry my donation is late.

Donation by Karen on 22/07/14

£10.00

Best of luck :)

Donation by Fraser & Pam on 20/07/14

£5.00

Donation by May and Douglas Clark on 20/07/14

£10.00

Donation by May and Douglas Clark on 20/07/14

£10.00

The Clockwork Raven would like to donate half of what we made on our stall at The Fool on MCC Family fun day.

Donation by Raven Taylor on 03/07/14

£15.00

Donation by East Kilbride PT on 25/06/14

£110.00

Wishing you all the best

Donation by Anonymous on 21/06/14

£100.00

Thank you to Maureen and everyone involved in the Max to Miami Bingo night:0)) xx

Donation by Anonymous on 19/06/14

£447.00

With good wishes

Donation by The Noddsdale Robertsons! on 19/06/14

£35.00

Donation summary

  • * Online donations£13,297.18
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£13,297.18

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