Eireann Allen

Supporting AHC for Anya, Katherine and Abhishek

Fundraising for Alternating Hemiplegia UK
£784
raised of £300 target
Donations cannot currently be made to this page
Event: Edinburgh Half Marathon 2018, on 27 May 2018
In memory of Anya Behl
Alternating Hemiplegia UK

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We support families and aid research to find a cure for this rare condition

Story

Anya is nine months old and has already been in hospital more times that anyone could ever bear. She has Alternating Hemiplegia of Childhood (AHC) - a rare genetic disorder thought caused by a mutation of sodium channels in the brain. There is no cure yet; there is little funding for research; there a approximately 1:1000000 children are affected worldwide. Without the AHC family network of all the mums and dads of AHC kids coming together to share information with medics and researchers, there is little hope of relieving the pain and suffering these gorgoeus children have to go through.

Please help fund that information sharing and support  them.

If you have time you can watch this documentary about AHC and it’s effect on everyone involved  

“Human Timebombs”

https://youtu.be/se6i5tD4uow

https://www.justgiving.com/fundraising/teamanya-ahc

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About the charity

Alternating Hemiplegia UK

Verified by JustGiving

RCN n/a
We are a support group for families with children who suffer from Alternating Hemiplegia. An extremely rare condition that causes alternating temporary paralysis of one or both sides of the body, epilepsy, dystonia, learning disability and neurological abnormalities, poor motor organisational skills

Donation summary

Total raised
£783.70
+ £167.50 Gift Aid
Online donations
£783.70
Offline donations
£0.00

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