Anya is nine months old and has already been in hospital more times that anyone could ever bear. She has Alternating Hemiplegia of Childhood (AHC) - a rare genetic disorder thought caused by a mutation of sodium channels in the brain. There is no cure yet; there is little funding for research; there a approximately 1:1000000 children are affected worldwide. Without the AHC family network of all the mums and dads of AHC kids coming together to share information with medics and researchers, there is little hope of relieving the pain and suffering these gorgoeus children have to go through.

Please help fund that information sharing and support  them.

If you have time you can watch this documentary about AHC and it’s effect on everyone involved  

“Human Timebombs”

https://youtu.be/se6i5tD4uow

https://www.justgiving.com/fundraising/teamanya-ahc