A year ago we found out that our little baby Eithan has a very rare genetic disorder named Kleefstra. This disorder is so rare, that doctors knows nothing about it, and there is hardly any research held.

But parents never give up, and two families founded a fund that raises money for research of medication treatment for Kleefstra.

Recently researches reached a significant point, that they can now say that the dream of Kleefstra families could come true in the near future, and medication could be developed for our kids needs.

Please open your hearts and help us to make our Eithan's and other Kleefstra kid's lives better.

Thank you