EDS Awareness

Elena Okubo is raising money for The Ehlers-Danlos Society
Donations cannot currently be made to this page

Zebras Exist! · 1 May 2022

The Ehlers-Danlos Society is dedicated to advancing and accelerating research and education in EDS and HSD. We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Story

Hi! Thanks for visiting 😊 

Getting diagnosed with Ehlers Danlos changed my life. It provided answers and understanding to a world of symptoms and pain that wasn't initially being taken seriously. However, so few physicians and medical professionals have awareness of EDS to the extent patients really need. Like many chronic conditions, EDS patients benefit when there's a whole team of doctors on the same page, dedicated to working and fully understanding our sometimes obscure symptoms, pain levels, sensitivities, and all else that EDS comes with. The Ehlers Danlos Society is starting to help make this happen globally! They just need more help from our community to not only raise money, but awareness as well. 

I appreciate you taking the time to visit this fundraising page! 

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Donation summary

Total
US$1,600.00
Online
US$1,600.00
Offline
US$0.00

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