Hi everybody, 

This is carter john carter was born with a genetic condition called "oculocutaneous albinism" which is charaterzied by the absent of pigment in his hair, skin and eyes. 

Albinism is associated with a number of different defects the main defect is the vision, the condition reduces the colour of the pigment is the iris and retina. Which is the light sensitive tissue at the back of the eye. So bright lights and sunny days make it increasingly hard for carter to open he's eyes! They call it photophobia his eyes also have nystagmus which is in relation to this condition this will never go but never get any worse. However carter will always have poor vision. His vision is not like our clear picture  this means he will need extra support in future for him to be safe.

Carter is registered as visually impaired and has VI specialist who come and visit him weekly! This is to help him and give them a rough guid on how his vision is doing. 

Carter lacks in skin pigmentation which makes him more prone to sunburn and skin cancers so he has to have suncream on everyday!

And as a new mum first time and only just coming to terms with his condition I personally think there is not enough research into this! My own GP at sorrel bank didn't know what albinism was he had a rough idea but told me he's going to have to research it as carter is now his patient! I was shocked. This money will go towards albinism fellowship for more research and things to be done in relation as people even children with albinism in different countries get prosecuted and it really isn't there fault! It's very upsetting and heartbreaking but carter is human like the rest and will not be any different however will have the extra support.

We are trying to raise money And my dad and brother were doing a sky dive On the 5th may so they thought it would be an amazing cause to help raise money for there grandson and nephew........ if you could all donate even if it's just a small amount doesn't have to be much it would be amazing!

Thank you x