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Ellen's 568 mile Triathlon in 100 days

Ellen Cramoysan is raising money for EHE Rare Cancer Charity
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284 mile Triathlon in 100 days · 25 January 2019

EHERCC supports EHE rare cancer patients, raises funds for critical research, and promotes EHE awareness. We help those with EHE while funding research to understand and ultimately defeat EHE, because people with rare cancers should not feel forgotten. We are determined to ensure they are not.

Story

For those that know me or the gorgeous Allana Parker you will probably know that she is doing a grand job of fighting EHE (a rare type of Sarcoma Cancer). It’s such a rare form of cancer and we want to raise awareness of this type of cancer and help fund future research to help others.  

Allana is one of a kind and doesn’t do things by halves and this was no different with her diagnosis, It is a very rare type of cancer and only affects between 100 - 200 people and with it being the rarest cancer there is very limited funding, research and awareness. Doctors in local hospitals don’t have answers and are also unsure on how to treat the illness, Allana has been so lucky to be referred to The Royal Marsden at Chelsea and is now under a specialist who we know she is in safe hands with. Unfortunately this isn’t the case for all patients with EHE they don’t always have this option.

So..... I’m the second in the team to relay fundraise  taking the over from the amazing Natalie on the 11th April. I am going to complete the distance from Allana’s house to the Royal Marsden hospital and back again TWICE!!.... 568 miles in the form of a triathlon! 100 days to complete it and will update my Strava and weekly social media updates... and yes to all the haters I’m back at work full time then so it will be a challenge 😆

Thank you for visiting my page and for continuing to support Allana. Love you all! 

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