Emily's page for The Lily Foundation

Emily Culme-Seymour is raising money for The Lily Foundation

Participants: James Lawford Davies, Nancy Lee

Donations cannot currently be made to this page

Ride London 100 · 2 August 2015 ·

Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

Story

Thank you for taking the time to visit my JustGiving page for RideLondon.

The Lily Foundation provide funding and critical support to families and children suffering from mitochondrial disease. Children born with mitochondrial disease suffer from challenging symptoms and face many hardships in their clinical care. Recently, the UK Parliament approved regulations to permit the use of Mitochondrial Donation in order to avoid the disease, and licenses for the process are now being looked at by the UK regulator. The Lily Foundation have provided guidance throughout this process and continue to drive the scientific developments forwards, towards treatments being available for families.

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Thank you for your kind support.

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Donation summary

Total
£538.28
+ £112.50 Gift Aid
Online
£538.28
Offline
£0.00

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