This year I have decided to take on the ultimate endurance challenge of walking 56km London towards coast, in the hope of raising lots of money for Shooting Star Chase children’s hospice charity caring for babies, children and young people with life-limiting conditions, & their families. Whether lives are measured in days, weeks, months or years.
On the 1st October 2013 my beautiful little Niece Anais entered into the world.... all for a second things were perfect, but that soon changed....
Within minutes of being placed in my sisters arms, she was taken and rushed into intensive care.....
What was to be the happiest moment of her life, soon turned into a living nightmare.
Anais spent spent the first few days being transported from one intensive care unit to another, with each hospital saying they could not give the answers that were needed & further test had to be done....
she ended up in the living the next year of her life in the wonderful hands of Great Ormond Street Hospital.
To this day Anais still remains undiagnosed.....
She is "Technology dependant’ & without it, she would not survive.
She receive’s 24hr nursing care at home when she is well. Thankfully, most night’s Anais will have a Nurse come into the home. To monitor her airway/ventilation and other machines, administer medication’s and record her vital observation’s. So Sarah is able to get some rest.
Anais is a complex and unique little girl.
Her health is extremely unpredictable.
Unfortunately, Anais spend’s the majority of her life visting hospital’s for appointment’s. Or having to be admitted for investigations or medical treatment.
Anais is very privileged to attended Shooting Star Chase Hospice, where she is provided vital respite care, that gives Sarah some time to recharge & to spend quality time with Anais older sister Freya.
it's been a long painful journey of ups and downs & despite the best efforts received from the medical team’s involved in Anais’ care, my sister may never get the answers she so want’s and need’s.
One thing we know for sure is, Anais is a little fighter.... she shows strength and courage in everything she does.
She's a beautiful, intelligent little girl for who we are so proud of!
PLEASE, PLEASE, PLEASE give what ever you can... Without the love and support they provide, I know our lives would not be the same.......
THANK YOU!!!! Xxxxxxxxxxxxx
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