Emma Larkins

In Memory of Ben Larkins

Fundraising for NesT
£4,720
raised
In memory of Ben Larkins
NesT

Verified by JustGiving

RCN 1107601

Story

Thanks for taking the time to check out this just giving page.

Ben has spent most of his young life with Nephrotic syndrome and very much battled with health and medication living with this debilitating condition. 

My brother lost his life on the 4th November after a much longer than usual episode leading to sepsis. 

We lost our beautiful soul that had such a huge impact on many who loved him.

He would often get so upset about little children going through this and was waiting for the all clear to try new treatment which was considered expensive to approve .  He was given the go ahead finally after years of waiting on the 11th November sadly. 

We were privileged to be Ben’s family and Bens partner Emma would like to raise money and donate in his name to change the lives of others and hopefully give people the chance to get treatment on time.

We love you Ben the most amazing human we are proud to be your partner, parents and sister.





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About the charity

NesT

Verified by JustGiving

RCN 1107601
Nephrotic Syndrome (NS) affects approx 10,000 people in the UK, majority are children, with no known cause or cure. The current treatment is non-specific and highly toxic, with many potentially life-threatening complications. NeST funds Bristol Children's Hospital in researching NS to find a cure.

Donation summary

Total raised
£4,720.00
Online donations
£4,720.00
Offline donations
£0.00

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