Thanks for taking the time to check out this just giving page.

Ben has spent most of his young life with Nephrotic syndrome and very much battled with health and medication living with this debilitating condition. 

My brother lost his life on the 4th November after a much longer than usual episode leading to sepsis. 

We lost our beautiful soul that had such a huge impact on many who loved him.

He would often get so upset about little children going through this and was waiting for the all clear to try new treatment which was considered expensive to approve .  He was given the go ahead finally after years of waiting on the 11th November sadly. 

We were privileged to be Ben’s family and Bens partner Emma would like to raise money and donate in his name to change the lives of others and hopefully give people the chance to get treatment on time.

We love you Ben the most amazing human we are proud to be your partner, parents and sister.