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Once In A Lifetime Experiences - Supporting MNDA

Barry Worthington is raising money for Motor Neurone Disease Association

Team: Remembering Angela Charles

In memory of Angela Charles
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Motor Neurone Disease moves fast. It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We campaign for better care. We’re here for everyone who needs us. Because with MND, every day matters.

Story

I wasnt really aware of Motor Neurone Disease, it's effects and the fact that it is a terminal illness until my sister-in-law Angela was diagnosed in December 2011.

Unfortunately Angela lost her battle in May 2012, MND is a devastating illness, there are 5,000 sufferers in the UK, life expectancy is 14 months from diagnosis. Angela's rapid demise was a shock to all the family and brought home just how cruel this devastating illness can be.

The Motor Neurone Disease Association (MNDA) is a charity that helps both the sufferers and their families come to terms with the illness and acts as a support mechanism for the carers, they also provide funding for research into what isn’t a high profile illness

The support that the MNDA give to families is nothing short of amazing, especially considering that the association is mainly run by volunteers. I would like to repay that support in some way

I am proposing to undertake a series of once in a life time experiences that will raise funds and awareness of and for MND

On Friday the 9th November 2012 there will be a Ghost Hunt in Wigan Stately home HAIGH HALL, the event is being organised by Ghost Grapplers and Wigan Medium Howard will be there, this will be an EXPERIENCE

On Saturday the 8th September 2012, myself, along with four others, spent the night, 8pm to 8am at Hardknott Fort in the Lakes

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Motor Neurone Disease (MND) is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting.

MND can affect how you walk, talk, eat, drink and breathe. However, not all symptoms necessarily happen to everyone and it is unlikely they will all develop at the same time, or in any specific order.

Although there is currently no cure for MND, symptoms can be managed to help you achieve the best possible quality of life.

Donation summary

Total
£963.00
+ £218.25 Gift Aid
Online
£963.00
Offline
£0.00

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