My little friend Robyn has had a pretty rough start in life. She was dianosed at 3 weeks old with Severe Aortic Stenosis, she was in heart failure and her family came scarily close to losing her. For her first 8 months she was in and out of hospital a fair bit, and had 2 balloon catheters and then open heart surgery to stretch her valve.

Robyn had a wonderful couple of years where she did brilliantly. but then her family started to notice that she was starting to tire more easily than she had before, and there was a definite difference in her energy levels in comparison with her friends.

They had always known that she'd need a valve replacement at some point in the future but her valve was still doing really well. She was sent for an MRI and they discovered that she has Endocardial Fibrolastosis (extensive scarring of the heart muscle). This means her heart doesn't relax properly and she now has an enlarged left ventricle. In turn this has caused increased pressures in the right side of her heart and led to her developing Pulmonary Hypertension.

On 14th October Robyn will have a heart valve replaced but she may still need a heart or heart and lung transplant in the future. It will be just over a week after her 5th birthday.

Make A Wish granted Robyns wish to be a Disney Princess earlier this year. It gave Robyn and her big sister Morghan a break from hospitals and worries and time to just be little girls.

I can't run a marathon or scale a climbing wall to raise money for Make A Wish. I can get a tattoo though. Even though I am terrified of getting a tattoo. I can because if little girls like Robyn and Morghan can be brave, then I can be brave too.

Please sponsor me and help Make A Wish continue to make dreams come true.

You can read more about Robyn and her family on www.http://adlibbed.blogspot.co.uk/

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