Lucy Brown

Freya's Hair cutting

Fundraising for FOP Friends
£244
raised
by 17 supporters
FOP Friends

Verified by JustGiving

RCN 1147704
We are raising money to fund research into FOP

Story

Thanks for taking the time to visit my JustGiving page.

Freya will be having her hair cut, which she will donate to The Little Princess Trust. She would also like to try some money for her friend Ellis who has a rare condition called FOP.

Here is a link to a newspaper article about Ellis

https://www-mirror-co-uk.cdn.ampproject.org/v/s/www.mirror.co.uk/news/uk-news/boy-growing-second-skeleton-one-13168337.amp?amp_js_v=a6&_gsa=1&usqp=mq331AQHKAFQArABIA%3D%3D#aoh=16208947044630&referrer=https%3A%2F%2Fwww.google.com&_tf=From%20%251%24s&share=https%3A%2F%2Fwww.mirror.co.uk%2Fnews%2Fuk-news%2Fboy-growing-second-skeleton-one-13168337

Please take a look and thank you for your donation x 

About the charity

FOP Friends

Verified by JustGiving

RCN 1147704
FOP Friends was established to raise money & awareness for the rare genetic condition fibrodysplasia ossificans progressiva. FOP is one of the rarest and most disabling genetic conditions known to medicine. A cure is near, but we need to keep research funded to perfect it in time for those with FOP.

Donation summary

Total raised
£243.25
Online donations
£243.25
Offline donations
£0.00

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