My name is Georgia and I am running the 2022 London Marathon for Muscular Dystrophy in memory of my big brother, Jordan. Jordan was diagnosed with Duchenne Muscular Dystrophy at the age of 5 years old, DMD is a genetic disease that causes muscles to weaken and waste away over time. When Jordan was diagnosed, my parents were told that he would be in a wheelchair at the age of 11 and quite possibly dead by the age of 14. However, Jordan only went in a wheelchair at the age of 13 due to starting High School and having to move around from classroom to classroom. Eventually, the muscles in his legs weakened as he wasn’t walking as much so he had to be in a wheelchair full time. My brother went on to gain 8 GCSEs and went to college to do ICT, he was definitely the smartest in the family. But, due to him getting weaker and weaker, Jordan had to drop out of college as he became bedbound and had to have everything done for him. My family fed, washed and dressed Jordan as he wasn’t able to do it himself. Jordan went into hospital in June of 2016 to get a feeding tube as he wasn’t able to swallow food himself anymore, due to the muscles in his throat deteriorating. He was in hospital for four months as he was quite underweight because of not being able to eat without severe pain in his throat. Once Jordan had put a bit of weight on, the operation for the feeding tube was able to go ahead. In September of 2016 we were preparing to bring Jordan home. However, he sadly passed away unexpectedly on the 13th of September 2016, just 6 days short of his 22nd birthday. My family had always known that Jordan had a low life expectancy but we really weren’t ready for him to go when he did. I was just 14 years old when Jordan passed away and really struggled to come to terms with his death. I hope that one day no one as young as I was has to watch their sibling be buried because of this awful disease. I also hope one day a cure can be found and save families from going through what we have. My brother was the bravest person I’ve ever known and I miss him terribly.