Thanks for taking the time to visit our JustGiving page.

Our family's lives have been turned upside down with the recent diagnosis of our beautiful little 15-month old daughter, Georgia. She has been diagnosed with a "high-risk, multi-system" case of a rare disease called Langerhans' Cell Histiocytosis. She will shortly be starting her treatment which will involve at least 12 months of Chemotherapy and Steroids. We have a long road ahead as a family but we are determined to keep a positive mindset and to do whatever we can to help other people and children who may find themselves in a similar situation.

The disease affects only around 50 children in the UK each year, with complex cases such as Georgia's only numbering around 1-3 each year. For this reason most people have never even heard of it, to get more information, please see the below link:

https://histio.org/histiocytic-disorders/langerhans-cell-histiocytosis-in-children/ 

In many cases, symptoms associated with the disease can present as "typical" baby issues such as persistent cradle cap and nappy/skin rashes. This is why we think it's vital that more people are aware of this condition and know to look for the signs if their children are not responding to normal treatments for these kind of issues.

Additionally we really want to raise much needed money for the charity Histiocytosis UK, who are dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.

Thank you to everyone for reading, and anything that you can donate will be hugely appreciated.

Love from Lawrie, Victoria, and especially Georgia x x x