Azure Charity Cycle Ride Venice to Milan 2020

Geraldine Perrier is raising money for Amy and Friends
Donations cannot currently be made to this page

Azure - Venice to Milan Charity Cycle Ride. · 25 June 2020

Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.

Story

On 24 June 2020,  "Team Azure"will begin a 250 mile cycle ride over 4 days from Venice to Milan for Amy and Friends, to raise awareness and hopefully as much money as possible for this wonderful charity! 

Amy and Friends is a registered charity that supports children and families who suffer with Cockayne Syndrome/TTD or related DNA repair disorders. These disorders are rare, inherited diseases. They cause poor growth, developmental delay and progressive neurological problems. The current average life expectancy for these children is 8 years and currently there is no treatment or cure! The charity supports over 500 families weekly and works closely with the medical profession. They have co-written 2 medical papers and also helped form a care pathway with the NHS and for doctors overseas.

We will also be joined by some of the family members of those children with Cockayne Syndrome as well as some of our close travel partners, Azure clients, family and friends.

Amy Hughes of Amy and Friends, was one of the worlds oldest living people with CS, she unfortunately passed away on the 1st January 2020but she has been an inspiration to us all. Amy's sister Laura will be joining Team Azure on this challenge too and if you are interested please do let us know by emailing Anna on anna.baccanello@azurecollection.com.

Your sponsorship means the world to us and every penny counts no matter how big or small. So please support this fabulous cause.

Thank you so much for your support xxxx

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Donation summary

Total
£775.00
+ £136.25 Gift Aid
Online
£605.00
Offline
£170.00

Charities pay a small fee for our service. Learn more about fees