Grace and Chloe Going blue for EB (Epidermolysis Bullosa)
Grace Nelson is raising money for The Phoebe Research Fund
Story
My best friend Chloe and I are dying our hair blue and doing a 14mile walk for EB (Epidermolysis Bullosa)
We want to make a difference in EB and to show that this disease is not a joke but life changing for the families and pupils who have EB and we want to show awareness to it and support the victims and families by raising money to help cure this awful condition.
And hope to show our support to EB victims as we go blue for the skin condition and to show that we are determined to show are support.
What is EB (Epidermolysis Bullosa)? you may ask well eb is a group of genetic skin conditions which cause the skin to blister and tear at the slightest touch. There are 3 main types of this condition:
EB Simplex: it’s the most common form of EB it’s characterised by a lack of adhesion of the skin directly above the basement membrane (the basal layer) and approximately 70% of people with EB have EBS.
Dystrophic EB: is a genetic skin condition characterised by a lack of adhesion of the skin under the basement membrane also Approximately 20% of people with EB have DEB.
Junctional EB: Is characterised by a lack of adhesion of the skin through the basement membrane and approximately 10% of people living with EB have JEB.
And there is CURRENTLY no cure for EB but even donating a little could make a huge difference
We want to make a difference in EB and to show that this disease is not a joke but life changing for the families and pupils who have EB and we want to show awareness to it and support the victims and families by raising money to help cure this awful condition.
And hope to show our support to EB victims as we go blue for the skin condition and to show that we are determined to show are support.
What is EB (Epidermolysis Bullosa)? you may ask well eb is a group of genetic skin conditions which cause the skin to blister and tear at the slightest touch. There are 3 main types of this condition:
EB Simplex: it’s the most common form of EB it’s characterised by a lack of adhesion of the skin directly above the basement membrane (the basal layer) and approximately 70% of people with EB have EBS.
Dystrophic EB: is a genetic skin condition characterised by a lack of adhesion of the skin under the basement membrane also Approximately 20% of people with EB have DEB.
Junctional EB: Is characterised by a lack of adhesion of the skin through the basement membrane and approximately 10% of people living with EB have JEB.
And there is CURRENTLY no cure for EB but even donating a little could make a huge difference