Story
Thanks for taking the time to visit my JustGiving page.
I have an extremely rare liver disorder, Crigler Najjar, with only aaround 100-150 known cases worldwide. I am lucky to have type 2 so my condition can controlled with medication. However, there is a chance that I can build a tolerance to it in the future so research and development is high on mine & my family's list of priorities!
I would like to raise awareness of child liver disease and the fantastic support that the Children's Liver Disease Foundation (now merged with the British Liver Trust) offers to children and families.
We are running a fundraising event on Sunday 2nd March, 9.30-11.30am at the Locksbrook Inn, 103 Locksbrook Rd, Bath BA1 3EN. At the event we will be selling tea/coffee (kindly donated by the Locksbrook) and cake, there will be games and a raffle with some great prizes!
I would love to see you there but if you are unable to attend and would like to support this cause then I would be grateful of any donation you are able to make via my JustGiving page.
If you would like to support us, we would be extremely grateful.
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