Story
As you will all know, I'm not sporty. I'd rather shave my head than run a marathon. I grew up being told by PE teachers (Mrs Kefford, I'm looking at you!) that I was lazy, fat, stupid. But after being diagnosed with McArdle's Disease at the age of 32, everything fell into place. I have a very rare genetic muscle condition that means that my muscles do not know how to use sugar as energy. This means I have daily cramps, muscle contractures, exhaustion and pain. No, I can't just exercise more and eat more greens. Yes, I will always have it. No, there's no cure.
So, I'm setting myself a challenge; one that might seem ridiculously paltry to some, but for me it is a huge one! I will be walking home from work (approx. 1 mile) every day next week (beginning 21st May). After breaking my ankle last year, never mind the muscle complications, this is a big thing, so if you would like to sponsor me - any amount at all - I would be so very grateful.
I have chosen to fundraise for AGSD-UK, who support people with all types of Glycogen Storage Disease, including McArdle's and they have provided me with great support in understanding my diagnosis. Thanks 😊
