About us
We support families through childhood hydrocephalus so no one faces it alone. We promote early diagnosis, quality care and support across the UK, led by those with lived experience.
Fundraisers
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Provides a child-friendly hydrocephalus book to family who needs it.
Funds expert networking for nurses, helping improve support for children.
Funds a family-day filled with support, shared experience and hope.
monthly
Provides a 'bravery bear' for a child in hospital.
monthly
Enables us to send vital information to families at the point of diagnosis.
monthly
Supports training for health visitors to spot hydrocephalus early.