ASHLEY JACKSON

JACKSON'S SCREWBALL RALLY

Fundraising for Ichthyosis Support Group
£1,050
raised of £500 target
by 20 supporters
Donations cannot currently be made to this page
Ichthyosis Support Group

Verified by JustGiving

RCN 1142457
We support everyone affected by ichthyosis to improve their quality of life

Story

For some who may not already know my wife, daughter and father-In-law all suffer from a rare genetic skin disorder called Bullous Ichthyosis which effects less than 1 in 100,000. They struggle on a daily basis to which no one sees their difficulties, however they still try so hard with daily life not allowing much to stop them or get in their way.

Therefore we would love your support, and ask if you would kindly sponsor us in taking part in a screwball rally. The rally consists of  tackling 8 countries around Europe in 5 days in a project vehicle, we will be averaging 450 miles per day! finding our way to each directed campsite before dark in order to pitch our tent up! but the question is can we make it?!! 

All sponsors will be going towards the charity very close to our hearts, ISG (Ichthyosis support group) who have helped us immensely over the last 8 years, providing my family with opportunities to talk to other suffers and share their experiences. Not forgetting all the fantastic events they organise to promote and help medical professions learn more about this rare condition.  

Thanks for taking the time to visit my JustGiving page.

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About the charity

Ichthyosis Support Group

Verified by JustGiving

RCN 1142457
The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public.

Donation summary

Total raised
£1,050.00
+ £73.75 Gift Aid
Online donations
£810.00
Offline donations
£240.00

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