Story
For some who may not already know my wife, daughter and father-In-law all suffer from a rare genetic skin disorder called Bullous Ichthyosis which effects less than 1 in 100,000. They struggle on a daily basis to which no one sees their difficulties, however they still try so hard with daily life not allowing much to stop them or get in their way.
Therefore we would love your support, and ask if you would kindly sponsor us in taking part in a screwball rally. The rally consists of tackling 8 countries around Europe in 5 days in a project vehicle, we will be averaging 450 miles per day! finding our way to each directed campsite before dark in order to pitch our tent up! but the question is can we make it?!!
All sponsors will be going towards the charity very close to our hearts, ISG (Ichthyosis support group) who have helped us immensely over the last 8 years, providing my family with opportunities to talk to other suffers and share their experiences. Not forgetting all the fantastic events they organise to promote and help medical professions learn more about this rare condition.
Thanks for taking the time to visit my JustGiving page.
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