JOSEP ALVAREZ-PEREZ

JOSEP's Run for Angelman Syndrome Support E&R Trust@JPMorgan Challenge2016

Fundraising for AngelmanUK (previously ASSERT)
£3,207
raised of £1,000 target
Donations cannot currently be made to this page
AngelmanUK (previously ASSERT)

Verified by JustGiving

RCN 1021882
We help and support UK families to find the best in Angelman Syndrome.

Story

I'm the father of a lovely 6-year-old girl with Angelman Syndrome, a true everyday hero. She has been consistently fighting her condition since she was born with an engaging smile in her face. Making progress thanks to her hardworking determination, and the love of her family, teachers, doctors and friends.

I'm sure you have not heard about this uncommon syndrome. Angelman Syndrome is a rare and severe neuro-genetic disorder. Characteristics of this disorder include developmental delay, lack of speech, seizures, motor coordination and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.

I would appreciate your help and contribution to this amazing organisation, ASSERT, which supports these children and their families.

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About the charity

AngelmanUK (previously ASSERT)

Verified by JustGiving

RCN 1021882
AngelmanUK is a United Kingdom based support group for those affected by the rare genetic condition Angelman Syndome (AS). A diagnosis of AS will have life changing consequences and we are there to help families cope. We also advise medical and care professionals dealing with this rare condition.

Donation summary

Total raised
£3,206.05
+ £221.25 Gift Aid
Online donations
£3,206.05
Offline donations
£0.00

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