On Sunday 4th October my Mummy is running the Glasgow 10k for me. She's running to raise awareness of NKH and to fundraise for Joseph's Goal.  This charity has been set up by best friend Joe's family, Joe has NKH like me and every penny raised goes directly to fund research being carried out by Dr Van Hove and his team in Colorado. NKH is extremely rare so we need to support this.  I haven't been very well this summer and have spent a lot of time in hospital so unfortunately I missed seeing all my NKH buddies when Dr Van Hove came to Manchester earlier this month.  My Dad was able to go along and learn about the progress being made with research - it's early days but this could mean better treatment for me and hopefully one day a cure for new babies born with NKH.

Please support this and sponsor my Mum!

Thank you, love from Jack xx

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