Symptoms are widely unknown and can range from limb weakness and headaches, to seizures or haemorrhages, with life threatening implications.

My good friend Jenny was one of those unlucky souls who experienced a symptomatic Cavernoma.

In August last year, Jenny started complaining about a loss of grip in her right hand and, by October, this had led to a loss of strength all throughout her right side.

On October 10th, Jenny visited Harrogate hospital with right hand weakness and a drop foot. 

As her symptoms seemed mild she was sent home where she experienced her first tonic-clonic seizure, lasting over 7 minutes. 

Jenny was then rushed back to Harrogate hospital and, over the course of the next week, suffered multiple seizures and gradually lost all mobility in her right hand side.

The Neurologists suspected Jenny had an aggressive tumour on the brain, which had caused a bleed. 

As such she was transferred to the LGI, where she remained under the care of Neurosurgeons for 2 months, and was finally operated on mid December 2022.

Thankfully after the operation the biopsy confirmed Jenny's condition was a cavernoma and Jenny has since made an [almost] full recovery, now living with epilepsy.

The wonders of modern medicine meant we were able to witness Jenny (or Julie or Jerry) get married to her now husband Tom this June, walking down the aisle with her dad Kevin by her side.

For this reason I'm raising money in support of the Cavernoma Alliance, who offer support to those affected by Cavernomas and also raise awareness of this surprisingly prevalent condition.