Hello everyone,

I’m going to be taking part in the challenge of riding London- Essex 100 miles in may. Im riding this for the Prader-Willi syndrome association. As you may or may not know Demi was born with a rare genetic condition called Prader-Willi syndrome which randomly occurs in 1 in 22,000 births, the condition brings many challenges which includes low muscle tone, feeding difficulties, developmental delay and effects the part of the brain that controls hunger so as a result she will always feel hungry, unfortunately there is no cure and this will be something she will have for life but we are hopeful with research and vital funding there will be hope for our gorgeous girl

I appreciate any donations or even a share

Big love Jamie