Team Jane, Lou and Chris are running the Paris Marathon with purpose

Paris Marathon With A Purpose - Duchenne Muscular Dystrophy

Fundraising for Duchenne UK
£4,337
raised of £7,500 target
by 97 supporters
Donations cannot currently be made to this page
Event: Paris Marathon 2018, on 8 April 2018
Participants: Jane, Lou and Chris
Duchenne UK

Verified by JustGiving

RCN 1147094
We have one clear aim: to End Duchenne

Story

Please see the video we  created for this fundraiser: https://vimeo.com/254535326

Meet Lou Bashall (marathon first-timer!), Jane Patterson and Chris Luxford!  We are friends training together to compete in the Paris Marathon on April 8th.  Yes, that’s 26.2 miles or 42.2 km that combines a really exciting personal challenge with the chance to discover one of the world's great cities by foot.

But this marathon is going to be more than just ‘feet to pavement’ for us because we’re doing it for charity and it’s one with a special significance - Duchenne UK. 

Duchenne Muscular Dystrophy is an aggressive, progressive muscle wasting disease.  It is the most common fatal genetic disease diagnosed in childhood. The disease almost always affects boys, and they tend to be diagnosed before the age of 5yrs. Duchenne Muscular Dystrophy is classified as a rare disease with only 2,500 patients in the UK and an estimated 300,000 sufferers worldwide.

Our connection to the disease and our very real motivation is all about one brave little boy called Felix.

Sadly, Felix was diagnosed with Duchenne Muscular Dystrophy when he was two and a half years old.  He is now aged 6yrs and Lou, a gifted Chiropractor with a special connection for children, works with Felix once a week to help support his muscles, joints and nervous system.  He is so young, he sees himself as no different to his little sister. 

But Felix and his family have much ahead of them, as do all the families
with children suffering this relentless debilitating disease.

Duchenne UK has a clear vision – to fund and accelerate treatments to find a cure for Duchenne Muscular Dystrophy and to do so inside 10 years.

We too have a clear mission –to ask for your help, to support their ambitious yet realistic vision.  And, in doing so, you’ll help families and children like Felix now and in the future. 

We want to raise money – our combined goal is 7500 pounds - but we also want to raise awareness for this rare disease.

We’re grateful for your support in two ways, a donation of any size and a commitment for you to learn and understand more about Duchenne Muscular Dystrophy.

We’ll make our way through the winter training here in the UK and we’ll pound the pavements of the French capital's most famous avenues and plazas starting from the foot of the Arc de Triomphe on the Champs Elysees.  We’ll take in the sights of the Place de la Concorde, the Rue de Rivoli, the Place de la Bastille, Notre Dame and the Eiffel Tower but we’ll do it with Felix and his family and all those suffering for Duchenne Muscular Dystrophy in our hearts, minds and feet - every single mile!

Thank you for supporting us – we’ll keep you updated every step of the way!

Jane, Lou and Chris



About the charity

Duchenne UK

Verified by JustGiving

RCN 1147094
As the leading Duchenne muscular dystrophy (DMD) charity in the UK, we want to find effective treatments for DMD and end its devastating impact. We’re going further than anyone has before, and we’re doing it faster, because this generation of people living with DMD can’t wait.

Donation summary

Total raised
£4,336.05
+ £423.75 Gift Aid
Online donations
£4,229.05
Offline donations
£107.00

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