Jessica's campaign to help people with Angelman syndrome

Janki Saye Foundation is raising money for Janki Saye Foundation
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Jessica · 5 October 2015

The Janki Saye Foundation provides grants to fund assistive technologies, transforming lives of people with disabilities and special needs. Communication and reading devices make a life changing difference to people with disabilities which impact speech, movement and vision.

Story

Thanks for taking the time to visit our JustGiving page.

We need to raise as much as we can to help people like Jessica.

Jessica was born with a rare neurological disorder called Angelman syndrome which causes developmental delay, lack of speech and seizures. It also causes walking and balance disorders affecting her co-ordination and cognitive functions.

Jessica’s mum has had to learn all of her facial expressions and gestures to understand how she is feeling; when she is in pain or hungry or just wants a hug. But it is hard for Jessica to communicate to others.

Jessica tried out the EyeGaze system and, in a short time, she grasped the concept of using her eyes to manipulate the system and understand cause and effect. Using games which are designed to help people communicate, she was able to guide the machine with her eyes to make it “blow bubbles”, play music and draw pictures.

For the first time in her life she had some control and was able to find another way to express herself. 

With your support, we were able to provide Jessica with a solution using iPads and Assistive Augmentation Communication (AAC) software.

Now we want to raise more money so we can  give people like Jessica a voice to communicate with us.

So please make a donation.

Thank you!!


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Donation summary

Total
£4,516.61
+ £27.50 Gift Aid
Online
£116.61
Offline
£4,400.00

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