Jason's Jason Aimee 2021

Jason Guy is raising money for The 1p36 Family Trust

Jason Aimee 2021 · 9 April 2021

The 1p36 Family TrustVerified by JustGiving
RCN 1181988
The 1p36 Family Trust, is set up to support and educate families affected by the rare chromosomal disorder, 1p36 deletion syndrome, that affects 1:5000/10,000 births, it causes developmental delays, heart conditions and seizures.

Story

Thanks for taking the time to visit my JustGiving page.

Our beautiful daughter Olivia was diagnosed with the rare 1P36 chromosome deletion syndrome, but it doesn’t define her.

We recently went to the 1P36 family trust conference in London to celebrate people that live with Olivia’s condition & to learn more about the rare, chromosome deletion syndrome.

So many inspirational stories & people!

🌟Olivia made the wall of fame bless her, SO,SO proud of her❤️👶

We will make her, the very best version of her ☺️

Any donations will help families and children get the care and vita therapy they need.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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Donation summary

Total
£11,563.08
+ £1,788.03 Gift Aid
Online
£11,563.08
Offline
£0.00

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