Jason's 2011 of charity fun for Unique
on 14 March 2011
on 14 March 2011
Hello all, I'm doing a few things for Unique who have really helped out my little cousin Dylan. he has a rare chromosone disorder since birth which has caused a severe form of Autism and Epilepsy amongst other things. He is 7, can't talk, is very unstable when walking and is a real handful for Janie & Andy but as you can see by the pic he is a sweet kid who laughs alot.
I'll be doing:
Newham Classic 10k Run - Sun 10th April - completed in 53:16.
Hommerton Hospital 10k Run - Sat 14th May - completed in 47:51
London - Brighton Bike ride - Sun 19th June
Nike Run to the beat London Half Marathon - Sun 25th September
please give what you can.
Unique provides information and support to individuals affected by rare chromosome disorders, their families and the medical and other professionals working with them. Rare chromosome disorders are lifelong conditions, often causing severe physical and learning disabilities and complex health issues. They affect at least 1 in 200 live-born babies. Most will be dependent on their carers for the duration of their lives, many unable to walk, feed themselves or communicate their needs. The disorders remain very poorly understood and Unique is a place for parents and carers to turn to for help and advice. We help them come to terms with their child’s diagnosis by providing information on hundreds of specific disorders, sensitive support through our Listening Ear service and by linking them with other families living with similar disorders. We also work to raise awareness and disseminate information among the medical and many other professionals involved, aiming to ensure those affected receive the care and support they need in their own communities.
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