In October 2015 my adorable niece Harriet was diagnosed with Rett Syndrome, a condition that until 18 months ago meant nothing to me or my family.  There is now never a day goes by that we don't think about the disorder.  To my family and I, Harriet will always be the most special and precious little girl that you could ever wish for and she never ceases to amaze us.  Harriet has so much to offer to each and everyone she meets and her smile is just infectious.  Please help us to keep it that way. 

Rett syndrome is a neurological condition which most often strikes previously healthy little girls between their first and second birthday and leaves them with multiple disabilities and medical complexities for life.  Most people with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.  Research has shown that girls with Rett do not have brain damage. They know and understand much more than their bodies allow them to show - but they are locked in, trapped by a body that cannot obey signals from their brain.

Whilst there is currently no treatment for Rett Syndrome, there is hope.  In 1999 scientists identified the genetic mutation that causes Rett Syndrome. In 2007, they unexpectedly reversed the condition in mouse models of even late stage disease.  Reverse Rett works to speed treatments and a cure for Rett Syndrome by funding research that will have a practical and positive impact on our children’s lives. They fund research from basic science to clinical trials and work to facilitate the translation of this work into clinical applications for people with Rett Syndrome.

Help us find a cure for our little Haribob! #changeispossible #hopeforharriet #untilshecan #reverserett

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