There will be various challenges in the #StepsforaCure fundraising campaign over the next few years. 

In January 2021, I'm taking 400,000 steps, an estimated 207.57 miles for the 400,000 people living with Usher syndrome, the leading cause of genetic combined deafblindness worldwide. The community are now involved, and to date is at over five MILLION steps. 

A cure is needed. 

Awareness is priority. 

Let's talk Usher syndrome. 

Whether it's a donation, a sponsored step, a mile or more- please join us if you can, any way you can. 

Thank you. 

CUREUsher is a patient-led charity raising funds to increase collaboration and research into a cure/treatment for Usher Syndrome, the leading genetic cause of deafblindness.

CUREUsher is a registered charity in England and Wales, number 1181293