Thanks for taking the time to visit my JustGiving page.

Every penny you donate will help me, my family and Dr Johan van Hove at his lab in Colorado find a cure for NKH, the rare genetic disorder I was born with. We have been overwhelmed by the support we have received and have already made massive strides in terms of research and understanding of the condition, and we thank you so much for anything you can do to help us.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.