One of our good friends daughter Daphne was diagnosed with CLCN4 a rare genetic disorder associated with intellectual disability and speech delay. There is no known cure, little known about what happens to the brain when this 'channel' fails to work properly. Parents Peter and Gina founded the CLCN4 charity with the goal of raising awareness, advancing research, care provided to children diagnosed with the condition. The message is one of hope, determination doctors will one day be able to have an entirely different conversation with a newly diagnosed family. The cause touched all of us