Thames trek and now BE half marathon
Participants: Joanne Scott-Fernandes, Caroline Scott, Hayley Giles and Aga Czub
Participants: Joanne Scott-Fernandes, Caroline Scott, Hayley Giles and Aga Czub
Thames Bridges Trek · 10 September 2016
My friend Jo's 6-year-old son, Luca, was diagnosed with Duchenne Muscular Dystrophy (DMD) just over 3 years ago. He is a bright, funny, adorable boy who just wants to run, jump, walk and play football but sadly, with every day that passes, his muscles are wasting away.
Between the ages of 8 and 14 his muscles won't allow him to do any of those things any more and he'll need a wheelchair to get around. Then his heart and his lungs will get weaker, he'll need help to breathe, and he'll gradually lose the ability to move. Eventually his heart and lungs will fail him, most likely before he reaches 30.
So all Team Luca fundraising efforts - in my case the 25km London Bridges Trekk - will go directly to the Duchenne Breakthrough Fund. This fund was created by Muscular Dystrophy UK to support international research into treatments for DMD. This fund has already brought forward potential therapies and more breakthroughs are happening everyday. So every cent or penny you can spare really does count.
If you want to find out more about my challenges for Team Luca please visit http://www.thamespathchallenge.com/thames-bridges-trek
Muscular Dystrophy UK is the charity for 70,000 people living with muscle-wasting conditions. They are making a difference today, providing vital information and support to help people live as independently as possible. They are making a difference for tomorrow, accelerating progress in research and driving the campaign for access to emerging treatments.
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