Karl's Warrior Adrenaline Race For Sturge-Weber Uk

Participants: Craig Nickels Denise Flanagan Seamus McGing Joel Stallion
Participants: Craig Nickels Denise Flanagan Seamus McGing Joel Stallion
Warrior Adrenaline Race · 21 April 2018
Hi
Thanks for visiting my page, on the 15th November my Son Riley was born with a port wine stain (birthmark) on his face, after a MRI scan he was diagnosed with Sturge Webber Syndrome.
Sturge Webber Syndrome is a rare condition that affects one in 20,000/ 50,000 babies. As well as the port wine stain affecting the skin, it will also involve an extra layer of blood vessels over the surface of the brain. This can cause later symptoms such as epilepsy, glaucoma, hemiplegia and learning difficulties.
Please donate and help raise awareness of this rare condition, as every donation no matter how big or small will help the charity carry on doing their fantastic work.
Thanks for reading this
Karl
#ItsNotJustABirthMark
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