Karl's Warrior Adrenaline Race For Sturge-Weber Uk

Karl Matthews is raising money for Sturge Weber UK

Participants: Craig Nickels Denise Flanagan Seamus McGing Joel Stallion

Donations cannot currently be made to this page

Warrior Adrenaline Race · 21 April 2018

Sturge Weber UK inspires to promote research and share knowledge to empower individuals diagnosed with Sturge Weber Syndrome and their families and carers. Giving strength to create a supportive, inclusive and caring community whilst raising both public and professional awareness.

Story

Hi 

Thanks for visiting my page, on the 15th November my Son Riley was born with a port wine stain (birthmark) on his face, after a MRI scan he was diagnosed with Sturge Webber Syndrome.

Sturge Webber Syndrome is a rare condition that affects one in 20,000/ 50,000 babies. As well as the port wine stain affecting the skin, it will also involve an extra layer of blood vessels over the surface of the brain. This can cause later symptoms such as epilepsy, glaucoma, hemiplegia and learning difficulties.

Please donate and help raise awareness of this  rare condition, as every donation no matter how big or small will help the charity carry on doing their fantastic work.

Thanks for reading this

Karl 

#ItsNotJustABirthMark

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Donation summary

Total
£3,110.00
+ £368.50 Gift Aid
Online
£2,360.00
Offline
£750.00

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