My cousin’s beautiful baby Libby is just one of under 100 people around the world with Bohring-Opitz Syndrome, a rare condition which affects growth and development. My sister and I are both running a half marathon on 16 September across the world from each other. I will run the Goodwood half marathon and she will run the Sydney half marathon in Australia. We would like to raise awareness about BOS and any donations will go towards funding further research, which in turn, will help support Libby and shape what the future holds for her. 

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